Information between 9th June 2024 - 7th September 2024
Note: This sample does not contain the most recent 2 weeks of information. Up to date samples can only be viewed by Subscribers.
Click here to view Subscription options.
| Parliamentary Debates |
|---|
|
King’s Speech
112 speeches (47,752 words) Friday 19th July 2024 - Lords Chamber Department for Education Mentions: 1: Baroness Monckton of Dallington Forest (Con - Life peer) Clinic in Ireland, which devotes itself to children and adults with cerebral palsy, spina bifida and muscular - Link to Speech |
| Department Publications - Transparency |
|---|
|
Tuesday 30th July 2024
Ministry of Housing, Communities and Local Government Source Page: MHCLG annual report and accounts 2023 to 2024 Document: (PDF) Found: Muscular Dystrophy UK 112 To provide bespoke training sessions; dedicated advice and support; support |
|
Tuesday 30th July 2024
Ministry of Housing, Communities and Local Government Source Page: MHCLG annual report and accounts 2023 to 2024 Document: (PDF) Found: to March 2025.Annexes Annual Report and Accounts 2023-24 157Institution Payments (£’000) Purpose Muscular |
|
Tuesday 30th July 2024
Ministry of Housing, Communities and Local Government Source Page: MHCLG annual report and accounts 2023 to 2024 Document: (PDF) Found: Annexes ’Institution Payments (£ 000) Purpose Muscular |
| Non-Departmental Publications - Transparency |
|---|
|
Jul. 16 2024
Medicines and Healthcare products Regulatory Agency Source Page: Freedom of Information responses from the MHRA: 22 January 2024 Document: (PDF) Transparency Found: CCSI Company Core Safety Information CI Confidence Interval CYP Cytochrome P450 DMD Duchenne Muscular |
| Arms Length Bodies Publications |
|---|
|
Jul. 29 2024
NHS England Source Page: Philips Respironics BiPAP machines – urgent field safety notices Document: Philips Respironics BiPAP machines - urgent field safety notices (webpage) Letter Found: hours of a 24-hour period patients with neuromuscular disease such as Motor neuron disease and Duchenne muscular |
|
Jul. 04 2024
NICE Source Page: Zilucoplan for treating antibody positive generalised myasthenia gravis [ID4008] Publication Type: Draft guidance: 1 Document: Public committee slides PDF 729 KB (webpage) In development Found: and clinical perspectives Substantial unmet need for people with refractory gMG Joint submission from Muscular |
|
Jun. 13 2024
NICE Source Page: Givinostat for treating Duchenne muscular dystrophy in people 6 years and over [ID6323] Publication Type: Invitation to participate Document: NICE's response to comments on the draft scope and provisional stakeholder list PDF 539 KB (webpage) In development Found: Givinostat for treating Duchenne muscular dystrophy in people 6 years and over [ID6323] |
|
Jun. 13 2024
NICE Source Page: Givinostat for treating Duchenne muscular dystrophy in people 6 years and over [ID6323] Publication Type: Invitation to participate Document: Final scope PDF 176 KB (webpage) In development Found: Givinostat for treating Duchenne muscular dystrophy in people 6 years and over [ID6323] |
|
Jun. 13 2024
NICE Source Page: Givinostat for treating Duchenne muscular dystrophy in people 6 years and over [ID6323] Publication Type: Invitation to participate Document: Final stakeholder list PDF 190 KB (webpage) In development Found: Givinostat for treating Duchenne muscular dystrophy in people 6 years and over [ID6323] |
|
Jun. 13 2024
NICE Source Page: Givinostat for treating Duchenne muscular dystrophy in people 6 years and over [ID6323] Publication Type: Invitation to participate Document: Equality impact assessment (Scoping) PDF 136 KB (webpage) In development Found: Givinostat for treating Duchenne muscular dystrophy in people 6 years and over [ID6323] |
|
Feb. 22 2023
NICE Source Page: Ataluren for treating Duchenne muscular dystrophy with a nonsense mutation in the dystrophin gene Publication Type: Summary PDF Document: Download guidance (PDF) (webpage) Published Found: Ataluren for treating Duchenne muscular dystrophy with a nonsense mutation in the dystrophin gene |
|
Feb. 22 2023
NICE Source Page: Ataluren for treating Duchenne muscular dystrophy with a nonsense mutation in the dystrophin gene Publication Type: Summary PDF Document: Download (PDF) (webpage) Published Found: Ataluren for treating Duchenne muscular dystrophy with a nonsense mutation in the dystrophin gene |
|
NICE Source Page: Nipocalimab for treating generalised myasthenia gravis TS ID 11958 Document: 28008-Nipocalimab-for-Myasthenia-Gravis-V1.0-NOV2023-NON-CONF.pdf (nihr.ac.uk) (PDF) Awaiting development Found: www.ema.europa.eu/en/medicines/human/orphan -designations/eu -3-22-2684 [Accessed 16 November 2023]. 15 Muscular |
| Scottish Government Publications |
|---|
|
Monday 2nd September 2024
Healthcare Quality and Improvement Directorate Source Page: Minutes for the Neurological Conditions Team covering years 2018-2024: FOI release Document: FOI 202400408922 - Information released - Annex (PDF) Found: neurological disorder , Huntington’s disease, migraine , motor neurone disease , multiple sclerosis and muscular |